Down Syndrome Registry May Provide More Insight Into The Disorder
Down syndrome is a chromosomal disorder that affects many children and adults in New York. Some may know already that many individuals who live with this disorder qualify for Social Security disability insurance. SSDI provides many people with the financial support they need to manage a disorder, injury, or illness.
Beyond financial support, however, many people crave a deeper understanding of the disability they live with. With the recent release of a new national registry, many people with Down syndrome will be able to do this.
The registry is called DS-Connect and allows people with Down syndrome or their family members to share information about their unique experience with Down syndrome. In turn, they can learn about the experiences of others and participate in research studies.
The registry is anonymous and was created with research in mind. It is meant to provide a way for researchers who are studying Down syndrome to interact with those who live with the disorder. Those operating the registry are encouraging people of all ages to sign up. While researchers have a substantial amount of data on younger people who live with Down syndrome, they are hoping to get more information from older participants.
With the help of a wide range of participants, researchers are hopeful that DS-Connect can help them provide health care recommendations for people of all ages who live with Down syndrome. Now that the much-anticipated registry has been launched, it will be interesting to see what new information researchers are able to discover.
Additionally, New York residents who live with Down syndrome may find the registry to be a useful tool for better understanding the chromosomal disorder.
Source: Disability Scoop, "National Down Syndrome Registry Goes Live," Shaun Heasley
Hiring Terry Katz and associates to represent my interests in my Workers Compensation and Social Security Disability case proved to be a smart decision that yielded an extremely successful outcome.
Through the lengthy and intricate process I came to realize just how valuable having a team of highly skilled representation was, and that is just how to describe the law firm of Terry Katz and Associates “Highly skilled legal representation”. I’d like to thank the entire team who worked on both my cases all of whom were always professional, knowledgeable and extremely caring. Throughout my entire case all of my calls and emails were always returned in a timely manner. My questions always answered competently and professionally. I always understood the process and felt a confidence in the process that I would not have had if not for hiring Terry Katz and Associates.
Mostly I’d like to thank Ms. Langdale who worked tirelessly on both my workers compensation case and my social security disability case. Her representation and legal prowess in the court room was nothing short of impressive to witness. I will never forget how confidently represented and protected I felt during her opening remarks at my social security disability hearing.
During these difficult times I was truly grateful to have Ms. Langdale working so diligently and expertly for my interests.
